Meet our sisters.

VOICE 01

Support groups with resources and discussion boards

I want support groups to be a place to uplift each other, but also vent. We are dealing with a life-threatening disease that isn’t always positive or pretty. There are groups that have resource pages, while others have discussion boards. A good combination of everything would be ideal and very helpful to our MBC community.

— Patti

VOICE 02

Better patient-provider communication

I have amazing oncologists. But they did not let me know that I was at very high risk for lymphedema. My doctor told me to watch out for swelling, but I didn’t even know what type of swelling. I got severe lymphedema. How did they not let me know about something so serious? We need more help with understanding what disease this medication can give me in the long run and how I can prevent it.

— Maria

VOICE 03

Clinical trials give women a chance

Clinical trials give women a chance to help other women and yes, you’re taking a chance, but the care you receive in a trial is excellent.

— Silvia

VOICE 04

End-of-life and financial support discussions

End-of-life and financial support are not talked about enough. After so much financial investment in a loved one with mBC, you realize how much debt has been accumulated over time.

— Manuela

VOICE 05

Support groups encourage self-advocacy

I was having really bad side effects from my meds. I learned from my support groups that I could ask to lower the dosage or change the schedule, so I did. She tells me, ‘I am the breast specialist here and I know how this medicine should be taken!’ It made me feel small, and I did not push the subject again.

— Marialuisa

VOICE 06

Managing meds with an appointment calendar

Receiving mBC treatment takes a lot out of me mentally and physically. Being responsible for my medication and scheduled infusions is important. To manage my medications and my treatment, I make sure I have an appointment calendar reminder that allows me to see how my month will be.

— Amelia

VOICE 07

The need for affordable dental coverage

The one thing that bothers me is the lack of affordable dental coverage, and I wish someone had told me about the importance of consistent dental check-ups before all of the decay. Fixing my smile would make me whole again. I really don’t feel as confident. It’s a constant reminder of my disease and the long-term journey I have.

— Lakia